Jan 28, 2014

Frustration, Freaking Out, And Then Reality (Faith) Pre-Surgery Post

This is a "Pre-Surgery" post that I never got around to posting and wanted to share!

I have a few confessions.  Over the last couple of weeks, I have been frustrated and freaking out inside.  I am not good at waiting, and when it comes to anything pertaining to my medical situation, I don't handle change very well.

Waiting for the beep.  The last time I had an interrogation of my defibrillator, I was informed that my battery was starting to run low. So, every month since September I have had to download information from my defibrillator with my Carelink Monitor and send it to the doctor's office.  My defibrillator is programmed to sound an alert once the battery is too low and it has reached a replacement level.  Initially, I was told it would only take a few weeks before I heard the alert.  It has been three months!  The last time I completed a download the nurse who interpreted the information stated that my battery voltage is at 2.62 which is replacement level; however, the defibrillator has not recognized the replacement level.  In a nutshell, when I asked what this means I was informed we have to wait on the beep. This totally frustrated me.  I am totally dependent on my Defibrillator, my battery is low, but I have to wait on a beep before my device is replaced. Why do I have to wait on the beep?  Insurance purposes.  Yep, this was the explanation I was given.  This leads me to my first confession, I am not a patient person and I get really frustrated when explanations are not logical to me.  However, I guess I will continue to wait on the beep!

Freaking Out!  Approximately two weeks ago, I was informed that my electrophysiologist was leaving and moving to Odessa! What?!?!?!  He has been my doctor for 18 years!  He has been the only physician that I have seen regarding my prolonged QT syndrome and defibrillator.  He is one of the best physicians in the Dallas area and he is leaving!  This may sound crazy but I cried (actually I had a panic attack).  It's funny how you can get attached to your doctor. I think it is because he is an exceptional physician and GREAT doctors are hard to find.  My second confession, I am not good with change from a medical perspective.

Reality.  Relax, Relate, Release and Remember...God is in control.  One of my favorite scriptures that I cited in my last post is Jeremiah 29:11 For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.  That being said, I have faith in My God and I know everything will be fine.

Until Next Time,
With Every Beat - Love Fran

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